winter leadership program - January 2018

January 2 - 7, 2018

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Young adults (ages 18-34) start the new year with an intensive leadership program at historic Pigeon Key in Florida. Explore leadership and community growth in experiential classroom sessions and teambuilding snorkel adventures.

Advocacy: The Next Generation

Is the mentorship program for mentors. Leaders from other Generation IX programs join together with those involved beyond Generation IX, all with  Hemophilia B for an experiential and residential retreat in beautiful Traverse City, Michigan. 

Young Adults 18-30

Elders 30 and up

 September 28 - October 1, 2017

at YMCA Camp Heyo-Went-Ha

It's a rare chance for more seasoned Mentors to exchange ideas and insights with young adult Mentors. 


Scroll down to learn more about all the Generation IX Projects

2017 summer mentorship program

The program that started it all, young adult mentors participate in a cutting-edge leadership training before guiding teens through a powerful weekend of challenge and fun in a magnificent camp facility outside of Portland, Oregon. Since teens are the fastest-changing age group in the bleeding disorder community, part of this program will entail learning skills and developing support from others in leading the highest quality of life possible. Teens will learn about themselves, their potential, and how to work in a group, drawing knowledge from both their mentors and the GutMonkey instructor team. 


The 2017 Mentor Event at Camp Collins (just a hop, skip, and jump outside of Portland, OR) Dates:

Mentors (18-30) arrive Tuesday June 6-11, 2017

Teens (14-17) arrive Thursday June 8-11, 2017

The Generation IX Project launched in 2014 as the first national mentorship program for young people living with hemophilia B. The Project has grown from it's original inception to a multi program and cross-country experience. We believe that the keys to powerful and effective mentorship are community, consistency, and adventure.


The project reaches far and wide to gather participants and shrink perceived distances between mentors and friends. We facilitate conversation and connection between events to ensure lasting bonds. The Winter Leadership Program may have been the largest national gathering of people (exclusively in in this young adult age range) affected by Hemophilia B. This is a unique opportunity, a necessary service, and a fact of which we are proud. It is our hope that every Mentor and Teen returns to their local community with a toolbox of new skills, and the motivation to make positive change.


The large events are the heart of the Project, but the interactions between programs are responsible for powerful connection and mentorship. Mentors and Teens can stay connected through secure and monitored social media and texting platforms. Mentors will often organize their own meet-ups at conferences and annual meetings. A lot of growth can happen in a weekend, but regular, and consistent mentorship fosters long lasting change. 


We believe that good learning happens when people are engaged in novel challenges. We give every Mentor and Teen the option to participate in a way that works for them and their personal definition of adventure. Though it may look like just fun and games, anyone who has been to the Project knows that every high ropes challenge course, coral reef scavenger hunt, and rubber chicken game, is paired with intentional mentors and learning objectives based on current trends and best practices. 



The Generation IX Project will take place at YMCA Camp Collins in Oxbow Park, just a half-hour drive outside of Portland, Oregon. Collins boasts one of the largest and most varied high-ropes challenge courses in the country, a beach on the Sandy River (known for the occasional salmon or otter spotting), and acres of evergreen forest to explore. Perched atop scaffolding that sets them amidst the canopy or sunken into the earth like an ornate hobbit hole,  the cabins offer environmentally sustainable and comfortable accommodations that complement the beauty of the natural surroundings. Once inside, you’ll find anything but the average treehouse or hobbit hole — each cabin has a bathroom, electrical outlets, windows, individual bunk lights, and radiant floor heating. All of the cabins are connected via a canopy walkway or central gathering area. Consider taking a few extra days after the program to explore the growing cultural nexus that is Portland, or take a drive through the mighty forest to the breathtaking Oregon coastline.

Mentor Retreat

Located in the a remote cabin in Colorado's Rocky Mountains, a team of Mentors came together to learn about programming intentional and education directed adventures for teens. Through facilitated discussions and activities, the crew designed the teen track for the Hemophilia B Symposium in March.

Teen Track at the Hemophilia B Symposium

The Generation IX Project Mentors facilitated the teen track at the Coalition for Hemophilia B Symposium in New York City. We traveled via Times Square and the subway to Circus Warehouse where the teens and mentors learned about taking positive risks and coming together as a community though a acrobatic skills workshops. 

Thank you John Thorson for the images in this gallery!


How do I apply? 

Please download the correct form for you age range, fill it out, and submit it to Kim Phelan by mail, fax, or email

Kim Phelan

The Coalition for Hemophilia B

825 Third Avenue Suite 226

New York, NY 10022

Office: (212) 520–8272

Cell: (917) 582–9077

Fax: (212) 520–8501


There are a limited number of spaces in this program. After your application has been reviewed you will be notified of your acceptance into the program. 


GutMonkey has been designing and delivering innovative experiential education programs and trainings for over 15 years, offering unconventional, adaptable, relationship-centered adventure education programs that teach those with chronic medical conditions how to lead positive rock-star lives. 


Wayne Cook, Kim Phelan, and Dr. David Clark each bring over 20 years experience in hemophilia B. We have been empowering people with hemophilia B and their families to ensure they have the best quality of life possible. We offer a family-oriented, hands-on approach. We provide timely information so members and their families are well informed. We believe education is power and provide several outreach programs such as our factor nine newsletter, factor nine family meetings, retreats, and yearly symposiums. The Coalition brings together some of the most dedicated professionals in the hemophilia community and we continually challenge ourselves to grow to meet the needs of the community. The Coalition for Hemophilia B was founded by John and Joyce Taylor after their son was diagnosed with severe hemophilia B. They recognized a need for an organization to serve this community.