THE GENERATION IX PROJECT
LEADERSHIP, FLORIDA KEYS
Ages 18-34 with a hemophilia b diagnosis
Start the year off right with an intensive leadership program at historic Pigeon Key in Florida. Explore the unique environment of this remote island while diving into community and personal growth topics like 'authentic leadership,' and 'service leadership.' Leadership at Pigeon Key will better prepare you to be a mentor at the Generation IX Mentorship program in Oregon, or any leadership position in the community.
Stay in historic bunk houses, eat meals together in the Florida breeze, and find your leadership goals for the coming year. Most of the programming takes place on the one of a kind Pigeon Key, but field trips have included snorkeling at coral reefs, kayaking, service work at the Dolphin Research Center, tours at the Marathon Turtle Hospital, and boat shuttle under the iconic 7 mile bridge. Close enough to fly into Miami, but remote enough to see a blanket of stars every night.
Wayne Cook, Kim Phelan, and Dr. David Clark each bring over 20 years experience in hemophilia B. We have been empowering people with hemophilia B and their families to ensure they have the best quality of life possible. We offer a family-oriented, hands-on approach. We provide timely information so members and their families are well informed. We believe education is power and provide several outreach programs such as our factor nine newsletter, factor nine family meetings, retreats, and yearly symposiums. The Coalition brings together some of the most dedicated professionals in the hemophilia community and we continually challenge ourselves to grow to meet the needs of the community. The Coalition for Hemophilia B was founded by John and Joyce Taylor after their son was diagnosed with severe hemophilia B. They recognized a need for an organization to serve this community.