THE GENERATION IX PROJECT

Mentorship, Leadership, advocacy

free for the hemophilia B community

 

There is a Generation IX program for every teen and adult in the hemophilia b community. Spread throughout the year, each event focuses on a different theme of community leadership, and no two years are alike. We believe that authentic connection can come from a sense of place. You can come back again, year after year, to build strong community bonds, and find new exciting challenges. There are a limited number of spaces in each event, so please apply promptly.  After your application has been reviewed you will be notified of your acceptance into the program. Select your adventure below to learn more.


Click image to see new acceptance guidelines!




 

Kim Phelan

The Coalition for Hemophilia B

757 Third Avenue, 20th Floor

New York, NY 10017

Office: (212) 520–8272

Cell: (917) 582–9077

Fax: (212) 520–8501

Email: hemob@ix.netcom.com

GEN IX Logo.jpg

LEADERSHIP

GutMonkey has been designing and delivering innovative experiential education programs and trainings for over 15 years, offering unconventional, adaptable, relationship-centered adventure education programs that teach those with chronic medical conditions how to lead positive rock-star lives. 

 

Wayne Cook, Kim Phelan, and Dr. David Clark each bring over 20 years experience in hemophilia B. We have been empowering people with hemophilia B and their families to ensure they have the best quality of life possible. We offer a family-oriented, hands-on approach. We provide timely information so members and their families are well informed. We believe education is power and provide several outreach programs such as our factor nine newsletter, factor nine family meetings, retreats, and yearly symposiums. The Coalition brings together some of the most dedicated professionals in the hemophilia community and we continually challenge ourselves to grow to meet the needs of the community. The Coalition for Hemophilia B was founded by John and Joyce Taylor after their son was diagnosed with severe hemophilia B. They recognized a need for an organization to serve this community.

hemob@ix.netcom.com