Getting to the guts of better living by breaking with routine. Ropes courses, back-country expeditions, retreats, staff trainings, and choose-your-own-adventure style keynote presentations and workshops. Whether you are a person with a chronic medical condition, a person who loves someone with a chronic medical condition, or you work to make the lives of people with a chronic medical condition better, we will ask you to think differently, share your story, and do things that challenge you.
GENERATION IX: ADVOCACY
Powerful conversations about real change for adults with hemophilia b
Leverage Inhibitor Retreat
Highly accessible adventure retreat for adults with inhibitors
Team development and leadership training for teens in the bleeding disorders community. Coming to a camp, conference, or retreat near you!
BE EXCELLENT TO ONE ANOTHER.
Which means make new friends but keep the old, let bygones be bygones, and the Golden Rule. Or better yet, the Platinum Rule, since treating someone as you would want to be treated is a bit of an assumption, right? Treat them the way you know they would want to be treated, because you asked them. Over a plate of tater tots or from the top bunk or while planning your raid of the candy stash in your coworker's desk drawer. Ask them.
DO THE RIGHT THING.
We know this is aspirational and subjective and some other SAT words that essentially express “According to whom?” It means gut-check your decisions, and follow that soupy compass, because it’s almost always right. Maybe you shouldn’t raid the candy drawer. Maybe you should bring a bag of mini Twix to work and leave it on your coworker’s desk with a note that says, “Sharing Is Caring,” and thus liberate the candy stash and create a “Candemocracy” for all!
Not like the WWE Universe. TV-Brave is not really what we’re after, and we don’t inventory that much body oil or spandex. More like Katy Perry lip-sync/dancing, or talking to a stranger about feelings right after you’ve rappelled 60 feet. And lest you get the wrong impression by all this tongue-in-cheekiness, we’re serious about this one. This one leads to the most awesome stuff we get to experience on this crazy zip line tour called life.
Leading Edge Teen Programs
For the past 16 years, Leading Edge has served the bleeding disorders community for free. It is the ultimately adaptable and relationship based. Our experienced facilitators work with Executive Directors. Program Directors, and Teen Program Leaders to adjust and and adapt you meet the specific needs of your teens. Though it can take many forms, at it's core, Leading Edge is experiential and fun education that helps teens with bleeding disorders connect, challenge themselves, and explore hard to talk about topics about living with a chronic medical condition.
Wilderness for Everyone
We're tired of having to see folks sit out activities at community events. We worked with CHES to offer a truly customizable adventure experience for adults with inhibitors. More than a personal growth retreat, LEVERAGE lets you join other young adults with inhibitors to take on the right level of challenge for you. The experienced program and medical staff tailor makes each week long retreat to meet your specific needs as closely as possible. Discuss the issues that affect you, like pain management, insurance, and travel in an inspiring temperate rain forest setting.
Find Your Adventure
Get in touch, and we'll help you find the right GUTMONKEY experience for you!