What is the Generation IX Project?
An experiential program designed specifically for people living with hemophilia B. The Generation IX Project supports the hemophilia B community with a series of mentorship, advocacy, and leadership programs that challenge, educate, motivate, and empower participants to make positive changes in their lives and in their communities. The Generation IX Project was launched in 2014 as a program uniquely designed to educate, empower and engage individuals with hemophilia B. Since then, hundreds of individuals with hemophilia B have participated in a Generation IX Project. Each program offers a different experience with different outcomes — The programs are designed to help you push your own personal boundaries in a safe, inclusive, and impactful way.
Whether this is your first event or you’ve attended since 2014, we want you to feel at home and supported by your community, organizations, and individuals that make this one-of-a-kind event possible.
If you have any questions about the event, feel free to reach us at info@gutmonkey.com.
Eligibility
Eligible applicants have hemophilia B (even if they do not yet have a diagnosis)
Are a resident of the US
18-35 years old
Deadline to apply: August 29, 2025
Frequently Asked Questions
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This year’s Generation IX Project will take place in the redwoods of Northern California, near Boulder Creek. Surrounded by towering trees and winding forest trails, the setting offers a dynamic space for community-building, personal growth, and outdoor adventure. From hands-on workshops to high-energy activities, this location creates the perfect environment for exploring leadership, strengthening connections, and deepening engagement. While we’re waiting to announce the exact camp name, the closest airport to fly into is San Francisco (SFO).
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Thanks to the generous support of Sanofi and the Coalition for Hemophilia B, participation and travel for all Generation IX Project events are provided at no cost to participants.
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Generation IX is designed to empower and develop your skills as an advocate, leader, and mentor through team challenges and serious fun. Expect a balance of physical, mental, and emotional approaches to learning. The facilitation team will work closely with your group to understand individual needs and requests. Every Generation IX participant will have the opportunity to choose from a spectrum of challenge levels.
The program is designed and implemented by the experiential education company, GutMonkey. Your facilitation team has years of experience in mentorship training, the outdoor education field, and the bleeding disorders community.
We will make the most of our time together, so please expect an active schedule. You will stay in cabin lodging, have group mealtimes, and follow a schedule of workshops and activities. We will make use of the beautiful outdoor settings for workshops as much as possible. Expect scheduled time for rest and reflection and know that you can always discuss adaptations to your experience with your facilitators at any time.
Previous activities have included high and low ropes challenge courses, urban scavenger hunts, rafting, and other team-building activities.
See For Yourself
Who Makes this possible?
The Coalition for Hemophilia B
Wayne Cook, Kim Phelan, and Dr. David Clark each bring almost 30 years of experience in Hemophilia B. They empower people with Hemophilia B and their families to ensure they have the best quality of life possible. Offering a family-oriented, hands-on approach, they provide timely information so members and their families are well informed. Centered on the belief that education is power, they provide several outreach programs such as the Factor Nine newsletter, family meetings, retreats, and yearly symposiums.
SANOFI
Sanofi is a proud sponsor of the Coalition for Hemophilia B's Generation IX Project. Representatives from Sanofi may attend portions of the Generation IX program to welcome participants and observe activities.
GutMonkey
With 20 years of experience working with the bleeding disorders community, GutMonkey delivers unconventional and adaptable adventure education programs that teach those with chronic medical conditions how to lead the lives they desire. The GutMonkey team challenges and inspires people to explore outside of their perceived limits and strive for excellence.
You
The Generation IX Project only exists because of the dedicated investment of time and energy from every one of its participants, parents of teen participants, and chapter and HTC leadership who gets the word out.