What is the Generation IX Project?

An experiential program designed specifically for people living with hemophilia B. The Generation IX Project supports the hemophilia B community with a series of mentorship, advocacy, and leadership programs that challenge, educate, motivate, and empower participants to make positive changes in their lives and in their communities. The Generation IX Project was launched in 2014 as a program uniquely designed to educate, empower and engage individuals with hemophilia B. Since then, hundreds of individuals with hemophilia B have participated in a Generation IX Project. Each program offers a different experience with different outcomes — The programs are designed to help you push your own personal boundaries in a safe, inclusive, and impactful way.

Whether this is your first event or you’ve attended since 2014, we want you to feel at home and supported by your community, organizations, and individuals that make this one-of-a-kind event possible.

 If you have any questions about the event, feel free to reach us at genix@gutmonkey.com or (503) 765-7046.

 

Eligibility

  • Eligible applicants have hemophilia B (even if they do not yet have a diagnosis)

  • Are a resident of the US

  • Fall Program age range: 20 - 120 years old

  • Mentorship Experience age range

    • Teen Participant: 13 - 17 years old

    • Mentor Volunteer: 18 - 35 years old

  • More eligibility criteria details are available in the Camp Doc registration form.


Frequently Asked Questions

  • Fall Experience: YMCA Camp Surf is our newest Gen IX location. Located close to the San Diego airport, the airy facilities sit on miles of beautiful beach coastline. The lapping waves are easily accessed for surf instruction, outdoor workshops, and evening campfires. The professional staff holds certifications in ocean safety and surf instruction.

    Mentorship Experience: YMCA Camp Collins is nestled in a temperate rainforest outside of Portland, Oregon. Seated on the Sandy River with its own beach, miles of trail, and a state-of-the-art high ropes course, Collins boasts beautiful outdoor meeting areas and indoor facilities. The cabins offer comfortable accommodations with restrooms, and private shower facilities are nearby. Camp Collins is the original home of the Generation IX Project Mentorship experience and offers the perfect balance of remote living and modern convenience. 

  • Thanks to the generosity of Medexus, participation and travel for all Generation IX Project events are provided at no cost to participants.

  • Generation IX is designed to empower and develop your skills as an advocate, leader, and mentor through team challenges and serious fun. Expect a balance of physical, mental, and emotional approaches to learning. The facilitation team will work closely with your group to understand individual needs and requests. Every Generation IX participant will have the opportunity to choose from a spectrum of challenge levels.

     The program is designed and implemented by the experiential education company, GutMonkey. Your facilitation team has years of experience in mentorship training, the outdoor education field, and the bleeding disorders community. 

     We will make the most of our time together, so please expect an active schedule. You will stay in cabin lodging, have group mealtimes, and follow a schedule of workshops and activities. We will make use of the beautiful outdoor settings for workshops as much as possible. Expect scheduled time for rest and reflection and know that you can always discuss adaptations to your experience with your facilitators at any time. 

     Previous activities have included high and low ropes challenge courses, urban scavenger hunts, rafting, and other team-building activities.

  • Step into your potential as a community leader. Join young adults from around the country, all affected by hemophilia B, and engage in active and enlightening experiential training. Grow closer to your cohort of leaders and learn more about yourself and your personal leadership style. Workshops and themes have addressed authentic leadership and equity in leadership.

    Multiple generations of advocates come together to discuss some of the hardest, and most worthwhile topics affecting the hemophilia B community today. Work together to pass community knowledge and culture to the next generation of leaders.

  • The Generation IX Project Mentorship Experience is your opportunity to find yourself in the hemophilia B community through fun and engaging community building and state-of-the-art training. Young adult mentors explore themes of mentorship and personal development with an experiential approach before welcoming teen participants to join in an unforgettable weekend of adventure education challenges and communal living. 

  • The Generation IX Project fosters exploration, challenge, and adventure. While not all risks can be eliminated, we take your health and safety very seriously and implement precautions to mitigate the risk of COVID-19. We need your help and cooperation to keep our community healthy and to continue offering events from the Generation IX Project.

    There will be a GutMonkey facilitator designated as a COVID-19 Manager leading up to and during the program. They will be a consistent point of contact for questions and support. 

    Please read and sign the entire COVID-19 Participant Agreement, which details the expectations we have of participants. 

    Generation IX Project COVID-19 protocols may be informed by the following sources:

    The Center for Disease Control (CDC) guidelines

    Federal, state, or local regulations

    Facility and contractor rules

    Professional consultants from relevant fields

    Medical professionals who serve the bleeding disorders community

    Partner organizations

    Change is frequent in the world of COVID-19, and it’s likely that our policies and procedures will be revised. Please read all emails from Camp Doc and GutMonkey. We are available to answer questions along the way. 

  • Mentor Volunteers will be lodging with teen participants in cabins and are required to do a background check before attending the program. Once a Mentor Volunteer completes their application, we will contact them to arrange the background check. 


See For Yourself


The Gen IX Advisory Board

The Generation IX Project now has an advisory board consisting of past participants of all ages. The purpose of the advisory board is to provide recommendations to Gutmonkey and CHB regarding programmatic and recruitment efforts. Additionally, the advisory board is serving as a catalyst between the hemophilia B community and everyone who makes decisions regarding the Generation IX Project. That being said, the advisory board is now accepting questions and comments. Feel free to message the advisory board below with any questions, comments, or concerns that you may have.


Who Makes this possible?

The Coalition for Hemophilia B

Wayne Cook, Kim Phelan, and Dr. David Clark each bring almost 30 years of experience in Hemophilia B. They empower people with Hemophilia B and their families to ensure they have the best quality of life possible. Offering a family-oriented, hands-on approach, they provide timely information so members and their families are well informed. Centered on the belief that education is power, they provide several outreach programs such as the Factor Nine newsletter, family meetings, retreats, and yearly symposiums.

Medexus

Medexus is proud to be the sole sponsor of the Coalition for Hemophilia B's Generation IX Project. Representatives from Medexus may attend portions of the Generation IX program to welcome participants and observe activities.

 GutMonkey

With over 15 years of experience working with the bleeding disorders community, GutMonkey delivers unconventional and adaptable adventure education programs that teach those with chronic medical conditions how to lead the lives they desire. The GutMonkey team challenges and inspires people to explore outside of their perceived limits and strive for excellence.

You

The Generation IX Project only exists because of the dedicated investment of time and energy from every one of its participants, parents of teen participants, and chapter and HTC leadership who gets the word out.


More Questions? Let’s Talk!