Generation IX

In partnership with Coalition of Hemophilia B
An immersive mentorship and leadership experience for young adults living with hemophilia B. Step into a weekend of challenge, connection, and growth that expands your sense of what’s possible – for yourself and your community.
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Building confident leaders within the hemophilia B community

Generation IX is a national leadership program created for and by young adults (ages 18-35) with hemophilia B, hosted by the Coalition for Hemophilia B and facilitated by GutMonkey.

Through shared adventure and genuine connection, participants grow together, finding the confidence to turn reflection into action and make a lasting impact in their communities and beyond.

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Inside the Gen IX Experience

Expect a weekend packed with adventure, reflection, and real-world learning designed to stretch your comfort zone in all the best ways.
Find your voice as a leader
Dig into what it means to lead with purpose through interactive sessions that blend mentorship, advocacy, and self-discovery.
Take on challenges that change you
Build courage and teamwork through shared experiences that get your heart racing – and remind you what’s possible when you step outside your comfort zone.
Get deep with your community
Trade stories, share insight, and learn from others who understand life with hemophilia B. These open, honest talks are at the heart of Gen IX.
Reflect and connect
Wrap up each day with time to pause, process, and look ahead. Reflection and guided discussions help you bring new insights and confidence back into your everyday life.
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Real connection. No wifi needed.

The magic that follows you home

Stronger sense of self

Gain clarity on your strengths, values, and leadership style through guided experiences that build confidence and self-awareness.

Tools to make an impact

Leave with practical skills in communication, advocacy, and collaboration that help you create positive change within your community & beyond.

Meaningful connections

Form lasting bonds with others who understand life with hemophilia B; get lasting support and connection long after the program ends.

Renewed sense of purpose

Walk away inspired, motivated, and ready to take on new challenges, knowing exactly how your voice and actions can make a difference.

Proven to make a lasting impact

For more than two decades, GutMonkey has served patients, aged 7 to 70, in all 50 states and across the diagnostic spectrum of bleeding disorders and other chronic medical conditions.

With our partnerships, GutMonkey has reached more than 30,000 patients, providers, and caregivers—through bold, transformative experiences that turn tough days into joyful ones and isolation into connection.

About GutMonkey

Join the next chapter of Generation IX

Explore our events calendar to find an upcoming Generation IX event near you.
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The “I was wondering about…”

Check out our FAQs below to get answers to your questions.
Where is it located?
This year’s Generation IX Project will take place in the redwoods of Northern California, near Boulder Creek. Surrounded by towering trees and winding forest trails, the setting offers a dynamic space for community-building, personal growth, and outdoor adventure. From hands-on workshops to high-energy activities, this location creates the perfect environment for exploring leadership, strengthening connections, and deepening engagement. While we’re waiting to announce the exact camp name, the closest airport to fly into is San Francisco (SFO).
Thanks to the generous support of Sanofi and the Coalition for Hemophilia B, participation and travel for all Generation IX Project events are provided at no cost to participants.

Generation IX is designed to empower and develop your skills as an advocate, leader, and mentor through team challenges and serious fun. Expect a balance of physical, mental, and emotional approaches to learning. The facilitation team will work closely with your group to understand individual needs and requests. Every Generation IX participant will have the opportunity to choose from a spectrum of challenge levels.

The program is designed and implemented by the experiential education company, GutMonkey. Your facilitation team has years of experience in mentorship training, the outdoor education field, and the bleeding disorders community.

We will make the most of our time together, so please expect an active schedule. You will stay in cabin lodging, have group mealtimes, and follow a schedule of workshops and activities. We will make use of the beautiful outdoor settings for workshops as much as possible. Expect scheduled time for rest and reflection and know that you can always discuss adaptations to your experience with your facilitators at any time.

Previous activities have included high and low ropes challenge courses, urban scavenger hunts, rafting, and other team-building activities.

Still have questions? Reach out to our team any time!

Contact our team