Camp Ellellbee

For families who are navigating life with skeletal dysplasia

Join us for a weekend that gives your whole family a chance to breathe, play, and feel at home – in a supportive space built for connection, care, and a little bit of camp magic.

Connect, unwind, and celebrate life with a community that gets it

Created by the Little Legs Big Heart Foundation and presented by GutMonkey, Camp Ellellbee is a free, all-inclusive weekend designed for families navigating life with skeletal dysplasia. It’s more than a getaway – it’s a space built for laughter, rest, and real connection.

Here, every member of the family matters. Kids find friends who understand, siblings feel seen, and caregivers finally get to exhale.

Through shared stories, outdoor fun, and moments of pure camp joy, families recharge, reconnect, and remember that they’re not alone.

What’s waiting for you at camp

Expect a weekend packed with adventure, reflection, and real-world learning designed to stretch your comfort zone in all the best ways.

Adventure and downtime

Enjoy a relaxed mix of facilitated activities, breakout sessions, and open time to explore the great outdoors at your own pace.

Games, laughter, and connection

Join in on family-friendly games, group challenges, and moments that spark joy and belonging.

A safe, supportive space

Share experiences about life with skeletal dysplasia in an open, judgment-free environment where every story is welcome and understood.

Authentic camp experience

Settle into simple cabins with bunk beds (perfect for late-night giggles, card games, and ghost stories before lights out).

Group meals & shared conversation

Enjoy delicious meals together (dietary needs welcome) and experience the kind of mealtime connection that only happens at camp.

See events calendar

Best. Weekend. Ever.

What your family will take home

Proven to make a lasting impact

For more than two decades, GutMonkey has served patients, aged 7 to 70, in all 50 states and across the diagnostic spectrum of bleeding disorders and other chronic medical conditions.

With our partnerships, GutMonkey has reached more than 30,000 patients, providers, and caregivers—through bold, transformative experiences that turn tough days into joyful ones and isolation into connection.

Ready for your next family adventure?

Explore our events calendar to find an upcoming Camp Ellellbee event near you.

The “I was wondering about…”

Check out our FAQs below to get answers to your questions.

Where is it located?

This year’s Generation IX Project will take place in the redwoods of Northern California, near Boulder Creek. Surrounded by towering trees and winding forest trails, the setting offers a dynamic space for community-building, personal growth, and outdoor adventure. From hands-on workshops to high-energy activities, this location creates the perfect environment for exploring leadership, strengthening connections, and deepening engagement. While we’re waiting to announce the exact camp name, the closest airport to fly into is San Francisco (SFO).

Is it really fully supported?

Thanks to the generous support of Sanofi and the Coalition for Hemophilia B, participation and travel for all Generation IX Project events are provided at no cost to participants.

What kind of activities should I expect?

Generation IX is designed to empower and develop your skills as an advocate, leader, and mentor through team challenges and serious fun. Expect a balance of physical, mental, and emotional approaches to learning. The facilitation team will work closely with your group to understand individual needs and requests. Every Generation IX participant will have the opportunity to choose from a spectrum of challenge levels.

The program is designed and implemented by the experiential education company, GutMonkey. Your facilitation team has years of experience in mentorship training, the outdoor education field, and the bleeding disorders community.

We will make the most of our time together, so please expect an active schedule. You will stay in cabin lodging, have group mealtimes, and follow a schedule of workshops and activities. We will make use of the beautiful outdoor settings for workshops as much as possible. Expect scheduled time for rest and reflection and know that you can always discuss adaptations to your experience with your facilitators at any time.

Previous activities have included high and low ropes challenge courses, urban scavenger hunts, rafting, and other team-building activities.

Still have questions? Reach out to our team any time!