Events Calendar
Join us for experiences that blend adventure, connection, and a whole lot of heart. Whether it’s a weekend in the woods or a laid-back community meetup, you’ll find events that will have you laughing, learning, and trying new things—all while safely navigating life with a chronic health condition.
June 2026
Leading Edge at New England Hemophilia Association Family Camp
Since 1992, NEHA has offered Family Camp to anyone with a bleeding disorder who receives care in New England. This vital program aims to accomplish two goals: to increase acceptance and management of the diagnosis and to build strong community connections. Watch this video to see what Family Camp is all about.
July 2026
Leading Edge at Nevada Chapters Annual Meeting & Industry Symposium
Part workshop, part adventure! Leading Edge is all about building resilience, making connections, and discovering fresh ways to manage life with a bleeding disorder. Come curious, leave confident (and ready for whatever comes next).
Leading Edge at Bleeding Disorders Foundation of North Carolina Summer Community Retreat
Part workshop, part adventure! Leading Edge is all about building resilience, making connections, and discovering fresh ways to manage life with a bleeding disorder. Come curious, leave confident (and ready for whatever comes next). Find out more here
August 2026
Leading Edge at Arizona Bleeding Disorders
We’re excited to bring Leading Edge to Arizona Bleeding Disorders! Designed for teens and young adults in the bleeding disorders community, Leading Edge combines fun, connection, and experiential learning to help participants build confidence, strengthen leadership skills, and develop meaningful relationships with peers who understand their journey. Learn more about Leading Edge: https://www.gutmonkey.com/programs/leading-edge/
National Bleeding Disorders Conference
Mark your calendars for NBDF’s 78th Bleeding Disorders Conference, August 13-16, 2026, in family-friendly Orlando, Florida! Our premier event unites patients, families, and health care professionals for three days of insightful educational sessions, valuable networking opportunities, and a dynamic exhibit hall featuring leading pharmaceutical partners, organizations, and a showcase of research poster abstracts. Don’t miss your chance to connect and learn—register early and join us for an unforgettable experience!
Camp Ellellbee | Georgia
Camp Ellellbee isn’t just a weekend away, it’s a weekend that brings us home. Designed for individuals living with skeletal dysplasia and their families, this free, all inclusive program is more than just a getaway, it’s a chance to connect, recharge, and be part of a growing, resilient community.
Camp Ellellbee | Maine
Camp Ellellbee isn’t just a weekend away, it’s a weekend that brings us home. Designed for individuals living with skeletal dysplasia and their families, this free, all inclusive program is more than just a getaway, it’s a chance to connect, recharge, and be part of a growing, resilient community.
Pathfinders at Nebraska Family Camp 🌲
We’re excited to bring Pathfinders to Nebraska Family Camp! Pathfinders is GutMonkey’s outdoor adventure program designed to help individuals and families affected by bleeding disorders connect with one another, build confidence, and experience the outdoors together in an accessible and supportive way. Whether you’re an experienced adventurer or simply looking to spend meaningful time in […]
September 2026
Inhibitcon 2026
InhibitCon is a new CHES Foundation program with three distinct tracks designed for the inhibitor community: Caregiver, Adult Men, teens and kids. The adult track will keep CHES’ long standing Momentum inhibitor program intact. This weekend program is packed full of education and support. InhibitCon offers topics critical to the inhibitor community such as treatment products (existing and in development), health insurance changes, mental health support, techniques for continued venous access health, pain management and more.
Camp Ellellbee | Northern California
Camp Ellellbee isn’t just a weekend away, it’s a weekend that brings us home. Designed for individuals living with skeletal dysplasia and their families, this free, all inclusive program is more than just a getaway, it’s a chance to connect, recharge, and be part of a growing, resilient community.
Leading Edge at Familia De Sangre
The four California bleeding disorders organizations invite you and your family to join us for the 8th Annual Familia de Sangre, a two-day conference on blood disorders with all programming presented in Spanish. Educational sessions and networking opportunities covering healthcare, education, mental health and support services. Las cuatro fundaciones de trastornos sanguíneos de California lo […]
Leading Edge at Pacific Northwest Bleeding Disorders Annual Meeting
Once yearly, the members of PNWBD gather for a day of education, getting to know one another, and developing a sense of community. This program is for families living in Oregon and SW Washington affected by bleeding disorders packed full of training, medical updates, product seminars, workshops, peer support, and fun! Learn More Here
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