Events Calendar
Join us for experiences that blend adventure, connection, and a whole lot of heart. Whether it’s a weekend in the woods or a laid-back community meetup, you’ll find events that will have you laughing, learning, and trying new things—all while safely navigating life with a chronic health condition.
June 2026
Pathfinders at Pacific Northwest Bleeding Disorders Family Camp
Please check HERE for more info.
Leading Edge at Bleeding Disorders Association of South Carolina Annual Meeting & HELLO Conference
The 2026 HELLO Conference embraces a forward-looking, heartfelt, and purpose-driven theme—one that reflects progress, unity, and momentum within our bleeding disorders community. Hope, Innovation, and Moving Forward Together speaks to our shared commitment to shaping a stronger future. Together, we will explore new possibilities that drive progress, elevate voices that guide tomorrow, and strengthen our community today to create lasting change. Through creativity, advocacy, and collaboration, we look beyond what is and move confidently toward what can be—together.
Leading Edge at Texas Bleeding Disorders Conference
The Texas Bleeding Disorder Conference (TBDC) is a joint effort between the Lone Star Bleeding Disorders Foundation and the Texas Central Bleeding Disorders. This event brings hundreds of people from all over the state of Texas together for a weekend of education, networking, and fun. Educational sessions are available for every step of life with a bleeding disorder. A fun final night event wraps up the weekend with activities for the whole family.
Pathfinders at Western Pennsylvania Chapter Family Event
Adventure that’s accessible! Pathfinders is all about exploring the outdoors together with your bleeding disorders community, no matter your pace or style.
Leading Edge at New England Hemophilia Association Family Camp
Since 1992, NEHA has offered Family Camp to anyone with a bleeding disorder who receives care in New England. This vital program aims to accomplish two goals: to increase acceptance and management of the diagnosis and to build strong community connections. Watch this video to see what Family Camp is all about.
July 2026
Leading Edge at Nevada Chapters Annual Meeting & Industry Symposium
Part workshop, part adventure! Leading Edge is all about building resilience, making connections, and discovering fresh ways to manage life with a bleeding disorder. Come curious, leave confident (and ready for whatever comes next).
Leading Edge at Bleeding Disorders Foundation of North Carolina Summer Community Retreat
Part workshop, part adventure! Leading Edge is all about building resilience, making connections, and discovering fresh ways to manage life with a bleeding disorder. Come curious, leave confident (and ready for whatever comes next). Find out more here
August 2026
National Bleeding Disorders Conference
Mark your calendars for NBDF’s 78th Bleeding Disorders Conference, August 13-16, 2026, in family-friendly Orlando, Florida! Our premier event unites patients, families, and health care professionals for three days of insightful educational sessions, valuable networking opportunities, and a dynamic exhibit hall featuring leading pharmaceutical partners, organizations, and a showcase of research poster abstracts. Don’t miss your chance to connect and learn—register early and join us for an unforgettable experience!
Camp Ellellbee | Georgia
Camp Ellellbee isn’t just a weekend away, it’s a weekend that brings us home. Designed for individuals living with skeletal dysplasia and their families, this free, all inclusive program is more than just a getaway, it’s a chance to connect, recharge, and be part of a growing, resilient community. FIND OUT MORE HERE
Camp Ellellbee | Maine
Camp Ellellbee isn’t just a weekend away, it’s a weekend that brings us home. Designed for individuals living with skeletal dysplasia and their families, this free, all inclusive program is more than just a getaway, it’s a chance to connect, recharge, and be part of a growing, resilient community. FIND OUT MORE HERE
September 2026
Inhibitcon 2026
InhibitCon is a new CHES Foundation program with three distinct tracks designed for the inhibitor community: Caregiver, Adult Men, teens and kids. The adult track will keep CHES’ long standing Momentum inhibitor program intact. This weekend program is packed full of education and support. InhibitCon offers topics critical to the inhibitor community such as treatment products (existing and in development), health insurance changes, mental health support, techniques for continued venous access health, pain management and more.
Camp Ellellbee | Northern California
Camp Ellellbee isn’t just a weekend away, it’s a weekend that brings us home. Designed for individuals living with skeletal dysplasia and their families, this free, all inclusive program is more than just a getaway, it’s a chance to connect, recharge, and be part of a growing, resilient community. FIND OUT MORE HERE
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