Events Calendar
Join us for experiences that blend adventure, connection, and a whole lot of heart. Whether it’s a weekend in the woods or a laid-back community meetup, you’ll find events that will have you laughing, learning, and trying new things—all while safely navigating life with a chronic health condition.
September 2026
Leading Edge at Familia De Sangre
The four California bleeding disorders organizations invite you and your family to join us for the 8th Annual Familia de Sangre, a two-day conference on blood disorders with all programming presented in Spanish. Educational sessions and networking opportunities covering healthcare, education, mental health and support services. Las cuatro fundaciones de trastornos sanguíneos de California lo […]
Inhibitcon 2026
InhibitCon is a new CHES Foundation program with three distinct tracks designed for the inhibitor community: Caregiver, Adult Men, teens and kids. The adult track will keep CHES’ long standing Momentum inhibitor program intact. This weekend program is packed full of education and support. InhibitCon offers topics critical to the inhibitor community such as treatment products (existing and in development), health insurance changes, mental health support, techniques for continued venous access health, pain management and more.
Camp Ellellbee | Northern California
Camp Ellellbee isn’t just a weekend away, it’s a weekend that brings us home. Designed for individuals living with skeletal dysplasia and their families, this free, all inclusive program is more than just a getaway, it’s a chance to connect, recharge, and be part of a growing, resilient community.
Leading Edge at Pacific Northwest Bleeding Disorders Annual Meeting
Once yearly, the members of PNWBD gather for a day of education, getting to know one another, and developing a sense of community. This program is for families living in Oregon and SW Washington affected by bleeding disorders packed full of training, medical updates, product seminars, workshops, peer support, and fun! Learn More Here
Pathfinders at The Idaho Chapter of the National Bleeding Disorders
We’re excited to bring Pathfinders to Idaho! Pathfinders is GutMonkey’s outdoor adventure program that brings individuals and families affected by bleeding disorders together through shared experiences in nature. Designed to be accessible, welcoming, and fun for all experience levels, Pathfinders creates opportunities to connect, explore, and build confidence while enjoying the outdoors as a community. […]
October 2026
Camp Ellellbee | Texas
Camp Ellellbee isn’t just a weekend away, it’s a weekend that brings us home. Designed for individuals living with skeletal dysplasia and their families, this free, all inclusive program is more than just a getaway, it’s a chance to connect, recharge, and be part of a growing, resilient community. FIND OUT MORE HERE
Leading Edge at Pacific Northwest Bleeding Disorders Regional Event
Please visit https://pnwbd.org/ for more info.
Pathfinders at North Dakota Family Hike 🥾
We’re excited to bring Pathfinders to the North Dakota Family Hike! Pathfinders is GutMonkey’s outdoor adventure program that helps individuals and families affected by bleeding disorders connect through shared experiences in nature. Designed to be accessible and welcoming for all experience levels, Pathfinders creates opportunities to build confidence, strengthen relationships, and enjoy the outdoors together. […]
Camp Ellellbee | Utah
Camp Ellellbee isn’t just a weekend away, it’s a weekend that brings us home. Designed for individuals living with skeletal dysplasia and their families, this free, all inclusive program is more than just a getaway, it’s a chance to connect, recharge, and be part of a growing, resilient community. FIND OUT MORE HERE
Little Legs Big Heart Conference
FIND OUT MORE HERE
November 2026
Pathfinders at Bleeding Disorders Alliance of Illinois
We’re excited to bring Pathfinders to Illinois! Pathfinders is GutMonkey’s outdoor adventure program that brings individuals and families affected by bleeding disorders together through shared experiences in nature. Designed to be accessible, welcoming, and fun for all experience levels, Pathfinders creates opportunities to connect, explore, and build confidence while enjoying the outdoors as a community. […]
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