Leading Edge

Bleeding Disorders

Indoor/Outdoor

1 session

Adults, teens & families

Learn actionable skills for managing your condition, set goals that will help you live your best life, and connect with others who “just get it” and can support you along the way.

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Camp Ellellbee​

Skeletal Dysplasia

Indoor/Outdoor

1 weekend

Families

It’s the summer camp experience—with the extra support and safe spaces families with achondroplasia need to play, connect, and grow. Through laughter, shared challenges, and meaningful conversations, it’s a chance to step outside your comfort zone and feel fully seen, supported, and celebrated.

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Pathfinders

Bleeding Disorders

Outdoor

1 session

Adults, teens & families

Get out on the trail while learning how to manage your condition outdoors. Forge lasting connections with others who understand the journey while testing your limits in a safe and supportive environment.

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YETI

Bleeding Disorders

Indoor/Outdoor

1 weekend

Chapter & HTC Staff and Teens

An unforgettable weekend of interactive adventures and real-talk sessions that help teens build confidence, independence, and life-long friendships. Along the way, they’ll learn how to be their own best caregivers—and play a key role in shaping future teen programs by sharing their experiences with local and national leaders.

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Generation IX

Hemophilia B

Indoor/Outdoor

1 weekend

Young Adults

Designed to challenge, educate, and empower those living with Hemophilia B. This one-of-a-kind program will push your personal boundaries in a safe and impactful way while immersing you in leadership development that supports both you and your community.

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Leverage/InhibitCon

Hemophilia with inhibitors

Indoor

1 weekend

Adults, teens & families

A multi-day experiential event designed for those affected by inhibitors. Learn new skills that will help you understand and manage your condition while participating in fun activities that will challenge your beliefs around what is possible.

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Caregivers Compass

Bleeding Disorders

Indoor

1 session

Adult caregivers

A space for caregivers of youth with bleeding disorders to connect, grow, and gain the support they deserve. This program is all about real experiences—navigating challenges, practicing resilience, and learning how to show up for yourself and others in meaningful ways.

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Programs for Patients

Looking for events for your child or loved one who is living with a chronic health condition? Learn more about our patient programs below.

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Summer Camp

All Conditions

Indoor/Outdoor

1 weekend

Families

Create an unforgettable camp experience with GutMonkey! With years of expertise in leading camps, we’ll help you design impactful programs, train staff, and weave in the magic of adventure, growth, and connection that makes camp truly special.

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Custom programming
Looking to create a program as unique as your community? Let’s work together to design immersive, hands-on experiences that align with your members’ needs and goals—from leadership development and health education to community building, and everything in between!
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